News / Announcements

Webinar – “What to do? My Anti-Seizure Medications Don’t Work!”: A Conversation About Seizures That Are Difficult to Manage

The session will be about intractable epilepsy and PNES (psychogenic nonepileptic seizures) featuring a panel presentation by Dr. Jeffrey Jirsch and Dr. Tom Snyder. Please contact our office to request the link to register if you are interested in participating in this webinar. The session is offered at no cost as a collaborative project between the Edmonton Epilepsy Association and Epilepsy Association of Calgary.


Marijuana Use for Epilepsy Study

Dr. Ana Suller Marti, an epileptologist with London Health Sciences Centre in London ON is conducting a study to determine whether Canadians who are living with epilepsy are using cannabis to help manage their condition. 

If you are an adult living with epilepsy (or parent/caregiver) or parents of a child/children aged 4 – 18 years who are living with epilepsy, you are eligible to participate. It is not a requirement to have used marijuana. It is hoped to get at least 350 responses to the survey.

To participate, click here to access the survey.


PWD Virtual Career Fair

A virtual career fair for people with disabilities will be held by Prospect Human Services on Thursday, September 23rd from 1 – 4 PM. There will be several employers to meet and educational institutions to learn about possible careers they can prepare you for. When you register you will receive a confirmation response followed by another email with instructions for the career fair closer to the event date. Please make sure you save that second email. Some of the employers featured are Revera, The Brick, Real Canadian Superstore, Canada Post, TD Bank, Metro Logistics and more. Please register here


Social Circus Program at Green Fools Theatre through Kids Up Front

Classes are held each Friday from October 1st through December 17th from 5:30 – 7:30 PM. Geared towards ages 12 – 16, this program introduces participants to a variety of circus skills including juggling, plate spinning, unicycle, tight wire and more. This is a great chance to develop social skills, learn new skills in a safe, supportive environment while focusing on fun, growth and community. If you’re interested in registering, please contact us at 403-230-2765 and we’ll put you in touch with Kids Up Front. There are only 2 spots left!


Thrive Grocery Delivery for Low Income Seniors

The Kerby Centre delivers groceries to low income seniors who are unable to get out to shop for themselves. For more information, or to find out if you qualify, please visit Kerby Centre Thrive Program


2021 Needs/Service Gaps Assessment

EAC has completed its Needs/Service Gaps Assessment.

For a copy of the complete report, please contact info@epilepsycalgary.com.


EAC in the Scotiabank Calgary Marathon

EAC is proud to be a charity partner in the Scotiabank Charity Challenge Calgary Marathon once again.

Click here to donate if you’d like to support our effort to raise $15,000.


Marathon Epilepsy Toronto presents Mindfulness Monday with Michael 

Michael conducts weekly Zoom meditation sessions with varying topics. The sessions include a short talk about that week’s topic, and start at 2:30 PM MT.

“The best practice is the one for which you make the time. It’s all about showing up and being kind to yourself.”

Michael also has a YouTube channel of archived Mindfulness Monday sessions.

If you’re interested in registering, please email Michael at michaelalexyoga@gmail.com.


Epilepsy Resources

EPILEPSY TORONTO EMPLOYMENT WORKSHOPS

Each month during the third week of the month, Epilepsy Toronto hosts three workshops dealing with employment matters. Mondays – Resumes; Tuesdays – Interviews; Thursdays – Various topics relevant to job seekers who are living with epilepsy. For more information, contact carter[at]epilepsytoronto[dot]org.

   

EDMONTON EPILEPSY – FAMILIES ONLINE CONVERSATIONS

The EEA is proud to launch a unique program and offer for member families, with children living with epilepsy.  The Families’ Online Conversations, or FOCs, are a special pilot project, which will run between January and June 2021. A brochure for the program can be downloaded here. Future sessions are scheduled for Apr 29, May 27 and Jun 24, 2021.

   

EPILEPSY FRIENDS FOREVER

This program allows children and youth living with epilepsy to  have fun, share, and relax with peers. The sessions are aimed at providing friendship, understanding, education and support in a creative atmosphere. Registration is required. Contact sonia[at]bcepilepsy[dot]com to register or for more information.

   

MATTHEW’S FRIENDS CANADA

News, recipes and extensive information on using the ketogenic diet therapy to manage some of the effects of epilepsy.

   

DANNY DID FOUNDATION

Information about SUDEP and devices and technology for seizure monitoring.

   

ONTARIO BRAIN INSTITUTE – PRIORITY SETTING

OBI and its partners EpLink and the James Lind Alliance are organizing a Priority Setting Partnership (PSP) on epilepsy to help shape the future of research on epilepsy and seizures. They are now seeking your feedback to determine what you think are priorities for the research to address. You can add your voice by taking the survey here.

 

 


Research – Helping Youths (15 – 17 yrs) Prepare to Transition to Adult Care

Transition of Care from Adolescence to Adulthood that people from Alberta can participate in. This trial is specifically designed for 15 – 17 year olds who have FASD, Epilepsy, ASD, CP or Spina
Bifida. It is a randomized control trial that involves using the MyREADY Transition App. For more information, please visit the MyREADY Transition website (https://www.myreadytransitionbbd.app/). If people are interested, they can also contact the Alberta Research Coordinator, Yomna Elshamy, at Yomna.Elshamy@ahs.ca or 780-735-6273.


EAC Volunteer Set to Run Charity Half Marathon After Recovering from COVID-19 

July 17, 2020
On Saturday, July 18, 2020 at 9 am, Epilepsy Association of Calgary Volunteer Jessica Chawrun will set out on a half marathon run in support of the charity.
Jessica will be joined by three of the Association’s Board members on Saturday for a socially-distanced half marathon-length run that replaces the Scotiabank Calgary Marathon that had to be cancelled due to COVID-19.

Read more here.


Epilepsy Association of Calgary Announces Appointment of New Executive Director

On behalf of the Board of Directors, I am pleased to announce Laura Dickson as the new Executive Director of the Epilepsy Association of Calgary.

Laura brings over a decade of experience in leadership roles in the non-profit sector, most recently as the Director of Families and Volunteers at Habitat for Humanity Southern Alberta. Laura is also a former Executive Director at the Women in Need Society and a former Chief Operating Officer at the Calgary Homeless Foundation. She holds an MBA in Executive Leadership from Royal Roads University, as well as her ICD in Non-Profit Governance Essentials.

With Laura’s strong credentials and stellar track record of building the capacity of other non-profits, we are confident that she will take the Epilepsy Association of Calgary to new highs as we seek to become one of the leading associations in Canada.

As we begin 2020, the Epilepsy Association of Calgary will be focused on growing its programming, its partnerships with the health care system, community stakeholders and other regional epilepsy associations, as well as its overall presence in the community for the estimated 20,000+ Calgarians who are living with epilepsy.

Will you join us on this journey? You can make an impact. Click here to help.

Thank you for your interest in our agency!

Sincerely,

Evan Legate

Chair of the Board of Directors